Ehlers-Danlos Syndrome Network CARES INC
262-514-2851
PO Box 66 510A. N. 6th Street
Muskego, WI 53150
Muskego, WI 53150
Fax: 2625142851
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Business Information
ehlers danlos, connective tissue, classical type, hypermobility type, vascular type, genetic disorder, stretchy skin, hypermobile joints, bruising, soft & velvety skin, six types of Ehlers Danlos, abnormal wide scars, loose joints, ruptures internal organs, collagen, fragile skin, flat feet, translucent skinOur online store sells, Ehlers-Danlos Network CARES bracelets, puzzle piece pins, teachers/student guide, ER wallet cards, EDS T-Shirts, 3 EDS Buttons
Awareness, Support & Support & Fund EDS Research
2005
National Arthritis Foundation, Midwest Chapter for Arthritis, American Pain Foundation, National Organization for Rare Disease
Advocacy Award from the WI Chapter of Arthritis, Nationwide Award for Advocacy from the American Pain Foundation
| MONDAY | : | 8:00AM | - | 6:00PM |
| TUESDAY | : | 8:00AM | - | 6:00PM |
| WEDNESDAY | : | 8:00AM | - | 6:00PM |
| SATURDAY | : | 9:00AM | - | 12:00PM |
Business Description
The Ehlers-Danlos syndromes are inherited in the genes that are passed from parents to offspring. They are categorized according to the form of genetic transmission into different types with many features differing between patients in any given type. The fragile skin and loose joints and tissue fragility is often a result of abnormal genes that produce abnormal proteins that confer an inherited frailty of collagen (the normal protein "glue" of our tissues).
In 2001, researchers discovered a new form of Ehlers-Danlos syndrome that is caused by an inherited abnormality in a protein other than collagen that also normally plays a role in binding together the cells of our tissues (including the skin, tendons, muscle, and blood vessels). Abnormalities in this protein, called tenascin, also lead to a form of Ehlers-Danlos syndrome. Researchers suspect that tenascin could play a role in regulating the normal distribution of collagen in the connective tissues of the body.
There are six major types of EDS. The different types of EDS are classified according to their manifestations of signs and symptoms.
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